Hi there, you all read about how Epilepsy affects the person, how a parent's life gets affects, but what about the siblings?? That's where I'm coming in.
My name is Jonathan Bolanos and I am 14 years old. My brother Julian has Epilepsy, in fact he has three forms of Epilepsy. He wasn't diagnosed until I was 10 and honestly, I really didn't understand what it was. All I knew was that my little brother who was 8 years old would constantly roll his eyes. Mom and dad would bring him back and forth to see his Neurologist and he was on tons of different pills.
"Mommy, did you have a seizure and forget that I only like my potatoes mashed?" asks my 5 year old, without a hint of amusement in his voice. When my sister heard, she laughed and then shared the story with Grandma and the rest of the family. To us, it's funny, but to a 5 year old whose mom started having seizures when he was 2, it's his reality.
January 17th, 7:00 am. It has been a while since I have been this excited about heading to work on a Saturday morning. But today, I get to be a part of something I enjoyed so much as a child – an exhibition at the Ontario Science Centre (yes, I realize that the above statement most likely places me somewhere in the nerd spectrum, and no… I’m not ashamed of that).
Let’s flashback fifteen years or so to one of the last school trips to the Ontario Science Centre that I remember from elementary school. There was an amazing NASA exhibition in which my class was broken up into two teams, one on the shuttle, and the other looking after ground control. I remember coming home convinced that I wanted to be an astronaut. This was always the beauty of the Science Centre to me. With every interactive exhibition, I always felt a spark of creativity, curiosity, and ingenuity; more importantly, the Science Centre made me feel empowered by learning, and helped me
Happy New Year Everyone,
I hope you had a really wonderful Christmas holiday.
It's hard to believe that we are mid-way through January, with this cold weather, I'm longing for an afternoon in my backyard sitting in the sun and listening to the sounds of summer, lawn mowers, birds, kids.... Ah. I'm looking out of my office window right now and the cold wind is blowing snow and the little birds away from my birdfeeder. I have to go outside shortly and I know that that wind is just going to bite my cheeks.
Silent Night... A time to really reflect on how lucky we have been...
I'm sitting at my desk wrapping up a few last year end tasks, listening to Guy Lombardo and the Royal Canadians. I know it is an old album, but it is from an era of my childhood that of reminds me of the excitement of waiting for Santa to arrive and my mom and dad equally as excited about the celebrations of the season.