Walk 2020 2

 

 

In partnership with the Durham Community Foundation's Walk for Your Cause join us for our annual walk for epilepsy. This year, our walk will look a little different than usual. Choose any time between October 18th and October 25th to take part in your own virtual walk, send us your photos, and join us for the Durham Community Foundation’s Live Facebook event on October 25th. Looking to turn it into a fundraiser? Download our pledge form bellow or contact This email address is being protected from spambots. You need JavaScript enabled to view it.

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At the age of 8 months Colton started having seizures and often they were status seizures lasting around 20 minutes. By the time Colton was 2 years old he had over 1000 seizures and was diagnosed with Dravet Syndrome. Dravet Syndrome is a rare genetic form of epilepsy which results in prolonged seizures, multiple seizure types, global development delay and other conditions.
Once receiving the diagnosis we started him on the medical Ketogenic diet that quickly helped with seizure control and eliminated the long seizures. The diet involves appointments to Sick Kids to make sure Colton is staying healthy and make adjustments.To this day Colton
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Epilepsy Durham Region is pleased to announce that we are one of the recipients of the Starbucks Foundation's Neighbourhood Grants program. Neighbourhood Grants are intended to help build sustained local impact and inspire increased partner volunteerism with nonprofit organizations that work in our communities.

 

The very special part about this grant is that we were nominated by an amazing young woman in our community, Christine. Christine not only shared her personal experiences, but also highlighted the support we have provided to a young girl that she used to babysit as a child (you may recognize this young girl as one of our youth ambassadors, Abbie). Please read some of her kind words from her nomination below:

 

"Epilepsy Durham Regionhelps those in need. With epilepsy, many people cannot obtain a driver’s license so they will help those people get to appointments or help with the other needs within the community. They also provide

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Alongside its Community Epilepsy Agency partners across the province, Epilepsy Ontario now has an online 50/50 raffle to support programs and services across the province, including Durham Region!

 

Proceeds from this online 50/50 raffle will help provide education, advocacy, information and support services to the almost 95,000 people living with epilepsy and their families in Ontario.

 

LEARN MORE AND BUY YOUR TICKETS HERE

 

 

Please help us by purchasing your tickets here. This province-wide online 50/50 raffle will take place year

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Epilepsy Durham Region Announces New Executive Director

 

Whitby – May 25, 2020 – It is with great pleasure that the Epilepsy Durham Region (EDR) Board of Directors announces the appointment of Chelsea Kerstens as the new Executive Director. Epilepsy Durham Region is a registered non-profit providing tailored support to strengthen individuals and their families’ ability to manage the physical, psychological and social effects of epilepsy.

 

Ms. Kerstens joined EDR in 2014 as the Community Outreach Associate bringing along significant experience in all client services, including epilepsy programming, advocacy, system navigation & client relations to the role of Executive Director. She is incredibly passionate about our agency’s cause, mission and values as well as the individuals and the families that we serve.



Epilepsy Durham Region will continue to

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