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Dr Rajesh RamachandranNair's study, "Sudden Unexpected Death in Epilepsy (SUDEP): Living with the knowledge", is seeking participants to assist. The aim of the study is to understand the range of patients' and their caregivers' views on how SUDEP awareness has impacted various areas of their lives (including health, career, finances, social life, etc).

 

They are looking for participants to take part in a recorded telephone interview of about 45-60 minutes in length, conducted in English with an experienced interviewer. In particular:


• male participants who either live with epilepsy or are primary caregivers of a person with epilepsy AND have known about SUDEP for at least 12 months

 

Participants will receive a $25 gift card, as a token of appreciation for their time commitment.

 

To learn more please click

Ajax High School Epilepsy Awareness 13

 UPDATE:

 

Check out the great article written about Ajax High School here!

 


 

Imagine at the end of an exhausting, cold, and dark Wednesday afternoon, six high school students and their teacher come to visit your office.

 

They are both shy and excited to share with us what they have achieved through their National Epilepsy Awareness Day Campaign. This year they took a unique approach to raising awareness; they created a video which teaches the viewer about what epilepsy is and how Epilepsy Durham Region offers help. While that in itself is inspiring, we are moved beyond words by their sophistication and level of compassion.

 

As we watched the video alongside the high school students, we are moved by how

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Would you Walk 400 Kilometres for a cause close to your heart?

 

A nine week journey to walk 400km to support a cause dear to someone's heart is about to begin. "It's the walk of my life", says volunteer and Ambassador Arnold Clarke, who was diagnosed with epilepsy as a child. "50 years later and we still need to raise awareness for this catastrophic disease. It's something I believe in and I want to give back." Clarke will embark on a nine week quest completing a total distance of 400 kilometers throughout Durham Region leading up to the organization's annual Walk for Epilepsy on Sunday, June 12th, 2016.

 

About Arnold:


Arnold was born with Epilepsy, having his first seizure when he was only 4-months old. However, that has not done anything to slow him down. Arnold has been a dedicated volunteer to EDR for the past 13 years, receiving the prestigious Queen's Jubilee award in 2013. Along with

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Epilepsy Durham Region relies on the generosity of its donors to continue its work. We are proof that every penny does count and many hands truly help to master the stigma associated with Epilepsy. We thank you for your generous gifts.

 

If you made a donation to Epilepsy Durham Region online in 2015 through the CanadaHelps platform, you can now easily access your charitable tax receipt here

 

SummerFest

A wonderful opportunity for children (ages 6-15) living with Epilepsy to enjoy specialized summer camp!

 

 

Children may attend any camp session throughout the summer. Camp sessions are as follows:

 

  • Session 1:  July 3rd - July 15th, 2016
  • Session 2:  July 18th - July 29th, 2016
  • Session 3:  July 31st - August 12th, 2016
  • Session 4:  August 14th - August 26th, 2016
  • Session 5: August 28th - September 2nd, 2016

 

Nursing care will be available onsite throughout the summer

 

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