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Epilepsy Durham Region is excited to launch our second annual Epic Golf Challenge! 18 teams of two will compete against one another in a battle of four 9 hole competitions, completing a total of 36 holes, trying to not only end up with the best round of golf, but also to raise the largest amount of pledged money. Our goal is to raise $108,000 to help support our Pediatric Management Program. If each of our 72 golfers raises $1,500, this goal will be a reality.

 

Who will end up with the best round or raise the most money? #EPICchallenge

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One in 12 Canadians has a rare disease, but many people face challenges getting an accurate diagnosis and appropriate treatment.

 

We appreciate the governments' announcement earlier this week for a working group to support people living with a rare disease in Ontario. This is a positive step towards improving the lives of people with rare diseases and their families.

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Epilepsy Durham Region will host their Annual General Meeting and Volunteer Reception on Monday, March 7th, 2016 at 6:30 p.m.

 

Epilepsy Durham Region is pleased to introduce Ms. Melike Ceylan-Leamen, mom and CEO of Aydin Inc. Ms. Ceylan-Leamen shares her family's journey of living with Epilepsy and the extraordinary lengths a family must travel.

 

We will honour volunteers and business leaders for their contribution to making lasting impact and changing lives and who in part have transformed the way we can help thousands in our community. The Annual General Meeting and volunteer reception takes place at the Whitby Library, Main Branch 405 Dundas Street West, Room 1B. Those wishing to attend the March 7th event are asked to RSVP by calling the EDR office at (905) 430-3090.

 

Founded in 1987 Epilepsy Durham Region is committed to promoting independence and optimal

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There have been an unprecedented number of drug shortages in Canada in recent years, including multiple shortages of Epilepsy medications. Seventy-four percent (17 out of 23) of the drugs used to prevent seizures have been affected by shortages. There is no indication that the situation is improving.

 

It's anti-seizure medications today, but tomorrow it could a medication that affects someone you care about. We are haunted by what could happen not only nationally for people living with Epilepsy, but to our very own local clients who are struggling with the drug shortages. Local family, Dot and her 24 year old son Julian are in desperate need of our help and desperate need for change. Please click here to learn more about drug shortages and how they can affect us locally.

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Epilepsy Durham Region thought there was no better way to introduce our new initiative 'Be a Kid for a Kid' to our community than to do so with artwork created by a local student. We hosted an art conest in which all students were asked to draw what it meant to them to be a kid. We are happy to announce the winner of the 'Be a Kid for a Kid' Art Contest is Claire, a Grade 2 student at Chris Hadfield Public School. We would like to thank Claire for her hard work and for creating a piece of art that reflects the kindness and encouragement that 'Be a Kid for a Kid' stands for. 

 

Congratulations Claire!

 

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