Epilepsy Durham Region's Epic Golf Challenge is back for a forth year! On May 10th, 2018, nine teams of four(ish) will compete against one another in a battle of 27 holes, trying to not only end up with the best round of golf, but also to raise the largest amount of pledged money.
When our 36 golfers pledge to raise $1,500.00 each, our goal of $54,000.00 in support of our Pediatric Management Program will become a reality!
Epic Golf Challenge
Thursday, May 10th, 2018
Royal Ashburn Golf Club
Isolation and stigma can often prevent those struggling with Epilepsy from the help they need.
Starting today, and continuing until Tuesday, May 23rd, we launch a province wide Epilepsy campaign - text the word PURPLE to 45678 to donate $5.00to elevate awareness.This campaign is accessible to everyone in Ontario who has a phone with texting capabilities. By texting the word purple, an automatic charge of $5.00 will appear on your phone bill (regardless of your provider). 100% of your donation will support local epilepsy programs. Your impact is
To kick off Epilepsy Awareness Day, Epilepsy Durham Region, in partnership with the Bowmanville Older Adult Association and The Bowmanville Rotary Club, are happy to invite you to join us for our annual Pancake Day competition! Watch as students, politicians, first responders, and community leaders compete in an epic battle to eat 5 pancakes the fastest, all while raising awareness about Epilepsy.
Date: Tuesday, February 21st, 2017
When: 7:30 a.m. - 9:00 a.m.
Where: Bowmanville Older Adult Association | 26 Beech Avenue, Bowmanville
What to bring: Empty Tummies!
Monday January 20, 2017
PRESS RELEASE from Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott
Contacts listed below.
Cannington Ontario – Families of over 150 children globally struggling with SCN8A - a rare but devastating genetic disorder - are joining forces to educate the public about SCN8A and inform affected families of available resources.
The First International SCN8A Awareness Day is coming up February 9th and family-based advocacy organizations including Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott: Advancing SCN8A Research, as well as individual families are reaching out to share the story of the grave impacts of this newly identified epilepsy.
February 9th will mark what would have been the 21st birthday for Shay Hammer whose father Michael, at the time a