Monday January 20, 2017
PRESS RELEASE from Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott
Contacts listed below.
Cannington Ontario – Families of over 150 children globally struggling with SCN8A - a rare but devastating genetic disorder - are joining forces to educate the public about SCN8A and inform affected families of available resources.
The First International SCN8A Awareness Day is coming up February 9th and family-based advocacy organizations including Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott: Advancing SCN8A Research, as well as individual families are reaching out to share the story of the grave impacts of this newly identified epilepsy.
February 9th will mark what would have been the 21st birthday for Shay Hammer whose father Michael, at the time a
March is national Epilepsy Awareness Month! We encourage our community members to get involved in raising awareness about epilepsy, seizures and seizure first aid in as many ways as possible. If you, a loved one, a colleague, or an acquaintance has epilepsy, take this opportunity to make a lasting difference in the lives of everyone living with seizure disorders.
Click here to learn how you can become involved today
MEMBER OF PARLIAMENT - WHITBY - Celina Caesar-Chavannes
As the Member of Parliament for Whitby, it is my pleasure to congratulate Epilepsy Durham Region on your 30th anniversary and recognize the tremendous service you provide to those living with epilepsy in the Durham Region.
I am pleased to extend my warmest greetings to everyone marking the 30th anniversary of Epilepsy Durham Region (EDR).
Since it was founded in 1987, EDR has raised awareness and provided a wide range of programs that improve the quality of life of area residents who are living with epilepsy. This milestone offers a wonderful opportunity to reflect on the history of your organization, to celebrate your many acheivements, and to set goals for the future.
I would like to commend the members of EDR, past and present, for their advocacy, and for helping those with epilepsy lead fulfilling, independent lives. Your dedicated efforts on behalf of patients and their families are greatly appreciated.
On behalf of the Government of Canada, I offer best wishes for a memorable anniversary
Epilepsy Durham Region is excited to launch our 30th Anniversary Signature Collection Jewellry line! Two signature pieces are now available - a sterling silver bracelet with amythyst charm and sterling silver 18 inch necklace with amythyst charm, with additional charms available to customize your piece just for you!