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A proposed Canadian project called Prevention of Ongoing Comorbidities through Early Intervention in Youth Living with Epilepsy (POPEYE), is conducting a survey to collect preliminary data. This anonymous survey is about opinions related to genetic testing for neurodevelopmental disorders in children with Epilepsy. Click here to take the survey.

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If you have the opportunity through your workplace to donate to a charity through United Way's Corporate Campaign this year, and would like your donation to support Epilepsy Durham Region, please indicate 'Other' on your donation form, and include Epilepsy Durham Region's charitable registration number.

 

Epilepsy Durham Region | Charitable Registration Number: 89670-5399-RR0001

Parent Forum Poster

Epilepsy Durham Region is proud to announce that we will be hosting Everything Epilepsy • A Parent's Forum on Saturday, October 24th, 2015 from 10:00 a.m. to 3:00. p.m. This is a day for parents and caregivers of people living with Epilepsy to learn, have questions answered, and meet other families who are also touched by Epilepsy. 

 

Guest Speakers:

 

DR. DARYOUSH GHARGHI | MD, MSc, FRCPC |

 

Adult Neurologist, Epileptologist & Clinical Neurophysiologist

 

Epilepsy 101 | Medications and Treatments | Psychosocial Impacts

 

Dr. Daryoush Gharghi completed his MD in Iran in 1998. He then completed his MSc in Neurological Sciences at McGill University in 2005 followed by a residency in Adult Neurology at the University of Toronto from 2007-2012. Dr. Gharghi also has a fellowship in Epilepsy and Clinical Neurophysiology

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U.S. pharmaceutical company sues Canadian Government Review Board regarding medication pricing which may directly impact the cost of all medications in Canada. To learn more about this story, please visit the following links:

 

Alexion Pharmaceuticals Challenges Ottawa's Ability To Control Patent Drug Prices

 

Maker of $700K-a-year drug challenging Canada's right to regulate prices

 

Voice your concerns to The Honourable Rona Ambrose MP, Minister of Health: 

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The Canadian Agency for Drugs and Technologies in Health (CADTH) are looking for patient input regarding the medication Fycompa (Generic Name: perampanel). If you are currently taking, or have previously taken this medication, and are interested in providing patient feedback, please click here.

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