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What is Ketogenic Diet for Epilepsy?

  • Ketogenic diet is one of the oldest forms of medical treatment for Epilepsy
  • It is a high fat, adequate protein, low carbohydrate diet

 

How does the Ketogenic Diet control seizures?

  • Fasting has long been associated with reduced seizures frequency
  • Ketones are produced during extended periods of fasting
  • When a fast is broken with foods that contain carbohydrates or protein, seizures return
  • The Ketogenic diet that is consistently reduced in carbohydrates, adequate in protein, and high in fat will mimic fasting state and also produce ketones

 

What type of seizures respond well to the Ketogenic Diet?

  • The ketogenic diet has been described to be effective for different types of seizures

 

How effective is the Ketogenic Diet

Introducing Liam

What is Tuberous Sclerosis Complex (TSC)?

TSC is a genetic disorder that causes non-malignant tumors to form in many different organs, primary in the brain, eyes, heart, kidney, skin and lungs

 

What Does it look like? 

The name tuberous sclerosis comes from the characteristic tuber or potato-like nodules in the brain, which calcify with age and become hard or sclerotic. The disorder--once known as epiloia or Bourneville's disease--was first identified by a French physician more than 100 years ago.

 

How common is it?

  • The disorder affects as many as 25,000 to 40,000 individuals in the United States and about 1 to 2 million individuals worldwide, with an estimated prevalence of one in 6,000 newborns
  • TSC occurs in all races and ethnic groups, and in both genders
  • Many TSC patients show evidence of the disorder in the first year of life.
SUDEP AWAREpng

SUDEP refers to the unexpected death of an individual, with a diagnosis of Epilepsy, who dies suddenly, in benign circumstances, without a structural or toxicological cause for death being found at autopsy.

 

It is not a condition or disease, but rather the category to which these types of unexplained deaths of people with Epilepsy are assigned. (The definition excludes people dying in status epilepticus).


For more information, please contact SUDEP Aware (SUDEP.news) | Toll Free: 1-855-85 SUDEP (78337)

Introducing Colten

What is Dravet Syndrome?

  • Dravet Syndrome is a genetic disorder of Chromosome 2 usually affecting a gene called SCN1A, causing epilepsy and other neurological and developmental problems. Dravet Syndrome accounts for 1% of the epilepsy population
  • The condition gets its name from the doctor who first recognised and described it - Dr. Charlotte Dravet

 

What Does it look like?

  • Seizures starting in infancy
  • Multiple seizure types
  • Developmental delays emerging in early childhood
  • Motor and behavioural disorders increasing with age

 

How Common is it?

  • 1 in 30,000 people worldwide are born with Dravet Sybndreome
  • About 1000 in Canada will have Drave Syndreom, but many will be undiagnosed

 

Why did it happen?

  • Genetic disorders occur

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