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What is Dravet Syndrome?

  • Dravet Syndrome is a genetic disorder of Chromosome 2 usually affecting a gene called SCN1A, causing epilepsy and other neurological and developmental problems. Dravet Syndrome accounts for 1% of the epilepsy population
  • The condition gets its name from the doctor who first recognised and described it - Dr. Charlotte Dravet


What Does it look like?Introducing Colten

  • Seizures starting in infancy
  • Multiple seizure types
  • Developmental delays emerging in early childhood
  • Motor and behavioural disorders increasing with age


How Common is it?

  • 1 in 30,000 people worldwide are born with Dravet Sybndreome
  • About 1000 in Canada will have Drave Syndreom, but many will be undiagnosed


Why did it happen?

  • Genetic disorders occur at the point of conception and nothing the mother or father did could have caused it or prevented it from happening.
  • 5% of cases are inherited
  • 95% cases are completely random


What are the Comorbidities?

  • Autonomic dysfunction
  • Autistic traits
  • Attention deficit and hyperactivity
  • Ataxia (unsteadiness)
  • Orthopedic conditions
  • Sleep disturbances


Who does it affect?

  • It affects males and females equally
  • It is present in all nationalities, races and ethnic groups


Can it be treated?

  • Dravet Syndrome is a lifelong disorder
  • Anti-epilepsy medications and special diets can reduce the seizures
  • Speech therapy, physiotherapy and occupational therapy can alleviate some of the symptoms
  • Scientists are researching new medications and treatments, and gaining greater understanding of the genetics of Dravet Syndrome


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