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Isolation and stigma can often prevent those struggling with Epilepsy from the help they need.

 

Starting today, and continuing until Tuesday, May 23rd, we launch a province wide Epilepsy campaign - text the word PURPLE to 45678 to donate $5.00to elevate awareness.This campaign is accessible to everyone in Ontario who has a phone with texting capabilities. By texting the word purple, an automatic charge of $5.00 will appear on your phone bill (regardless of your provider). 100% of your donation will support local epilepsy programs. Your impact is

Summerfest

Summerfest camp sessions begin the week of July 1st and run until September 1st. Please note, there is also a Victoria Day long weekend four day camp program offered. For more information, please call 1-800-463-1119.

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To kick off Epilepsy Awareness Day, Epilepsy Durham Region, in partnership with the Bowmanville Older Adult Association and The Bowmanville Rotary Club, are happy to invite you to join us for our annual Pancake Day competition! Watch as students, politicians, first responders, and community leaders compete in an epic battle to eat 5 pancakes the fastest, all while raising awareness about Epilepsy.

 

Date: Tuesday, February 21st, 2017

When: 7:30 a.m. - 9:00 a.m.

Where: Bowmanville Older Adult Association | 26 Beech Avenue, Bowmanville

What to bring: Empty Tummies!

 

SCN8A Infographic

 

Monday January 20, 2017

 

PRESS RELEASE from Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott

Contacts listed below.

 


Cannington Ontario – Families of over 150 children globally struggling with SCN8A - a rare but devastating genetic disorder - are joining forces to educate the public about SCN8A and inform affected families of available resources.

 

The First International SCN8A Awareness Day is coming up February 9th and family-based advocacy organizations including Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott: Advancing SCN8A Research, as well as individual families are reaching out to share the story of the grave impacts of this newly identified epilepsy.

 

February 9th will mark what would have been the 21st birthday for Shay Hammer whose father Michael, at the time a

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March is national Epilepsy Awareness Month! We encourage our community members to get involved in raising awareness about epilepsy, seizures and seizure first aid in as many ways as possible. If you, a loved one, a colleague, or an acquaintance has epilepsy, take this opportunity to make a lasting difference in the lives of everyone living with seizure disorders.

 

 

Click here to learn how you can become involved today

 

 

  

  

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