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In November, 2018, Epilepsy Durham Region launched a new, comprehensive, local Epilepsy Clinic in Durham Region. Encompassed in this initiative is our Clinic to Community program which ensures that individuals and their families living with epilepsy receive the education and support that they need to be partners in their healthcare plan.
To preserve our local epilepsy programming, Clinic to Community, and the Epilepsy Clinic, we have set a goal of raising $500,000, and we're almost there! Our
Epilepsy Ontario and our province’s Community Epilepsy Agencies are calling on the Ontario government to include funding for epilepsy education and support programs in this year’s provincial budget. With funding, agencies can continue and expand their education and support programs and we can bring programs to parts of the province without a local agency.
We are calling you you to sign our Petition to the Legislative Assembly of Ontario to provide funding for education and support programs through Ontario’s Community Epilepsy Agencies in the 2019 Provincial budget.
To help us with this petition, please follow these steps:
**Please note that all signatures must be original to be eligible - please do not scan or fax this
Epilepsy Durham Region's Epic Golf Challenge is back for our FIFTH year! On May 9th, 2019, 12 teams of four(ish) will compete against one another in a battle of 36 holes, trying to not only end up with the best round of golf, but also to raise the largest amount of pledged money.
*excerpt from Canadian Agency for Drugs and Technologies in Health. https://cadth.ca/collaboration-and-outreach/advisory-bodies/call-nominations
Canadian Agency for Drugs and Technologies in Health (CADTH) is creating a new Patient and Community Advisory Committee to support a greater diversity of perspectives in our organizational governance.
CADTH is an independent, not-for-profit organization responsible for providing Canada’s health care decision-makers with objective evidence to help make informed decisions about the optimal use of drugs and medical devices in our health care system. Patient groups, patients, and their families already contribute to CADTH, including to our CADTH Common Drug Review and CADTH pan-Canadian
Seizure detection and alerting devices hold promise for preventing sudden death in epilepsy.
Cassandra Kazl, MD; and Daniel Friedman, MD, MSc | Practical Neurology | November/December 2018, Volume 17, Number 9 | Retrieved From: http://practicalneurology.com/2018/12
For many of the 3 million adults and 470,000 children in the US (1.2% of the population) living with active epilepsy,1 the unpredictable nature of seizures is unsettling for both patients and caregivers. Seizures can have many immediate negative consequences; the most significant is sudden unexpected death in epilepsy (SUDEP), the most common cause of premature death among people with epilepsy.2 The pathophysiology of SUDEP often includes a